Earl Cole is the Founder & Chairman of Perthes Kids Foundation. The former Perthes patient, Advertising Executive and winner of Survivor Fiji (on CBS Television), earned his Business degree at the University of Washington, studied Entrepreneurship at Harvard Business School, and Nonprofit Leadership at Stanford University Graduate School of Business. He runs the day-to-day operations for Perthes Kids Foundation and is the Executive Director of Camp Perthes International (USA, Australia, UK and Spain), continuing his advocacy in raising awareness, funds for research, education and support for families dealing with Legg-Calvé-Perthes disease around the world.
Elaine became involved with Perthes Disease through her now 8 year old son when he was diagnosed just after his 6th birthday with Perthes Disease. Elaine volunteered at Camp Perthes UK in 2019 which was also the first camp Ryan attended. Elaine lives in Ayrshire, Scotland where she works as a mental health nurse. Ryan’s continues on his journey with Perthes disease and loves to cycle and swim and is keen to start playing golf again!
Alexander Aarvold, MD
Dr Alexander Aarvold is a consultant surgeon who specialises in Children’s Orthopaedic surgery. Aarvold graduated from medical school at the University of Edinburgh in 2002. He trained in Edinburgh, Sydney, Nairobi, Oxford, London and the Wessex area and completed a fellowship in paediatric Orthopaedics at British Columbia Children’s Hospital in Vancouver Canada. Dr Aarvold is an honorary associate at the University of Southampton. He runs a research programme focusing on development dysplasia of the Hip (DDH), Perthes disease, osteonecrosis and cerebral palsy. Aarvold also sits on the board of the international Perthes Study group.
Sara-Jayne Talley became involved with the Perthes Kids Foundation UK through her son who was diagnosed with Perthes aged 9. Sara-Jayne lives in Hertfordshire where her son is actively engaged in school football, golf and swimming.
Diagnosed with Perthes as a child, knew he had to offer his time to Perthes Camp once we started in the UK. Volunteering at the very first camp, he says he “Found something special, something worth giving up a week of my time to help out all the children that feel alone in their battle with Perthes.” Connor has since become a role model for all the kids at camp, being able to share stories that the children themselves relate to - making the kids themselves, feel part of a special community, and not alone in the world.